Aging parents and special children who are in their prime but cannot do without care… “Supporting the disabled” families are looking forward to social assistance
Text/Yangcheng Evening News All-Media Reporter Li Meiyan Intern Guo Yixuan
Liwan District, at 6 o’clock in the morning, 78-year-old Aunt Xian got up and prepared breakfast, turned around and walked into the room to wake up her daughter to take medicine, and helped her record the heart rate value on Komiks 1960 witch cloth draw morningKomiks 1960 witch cloth draw; Haizhu District, in the morning href=”https://funnybookish.com/”>Babaylan 1990 clothes draw9:00, 74-year-old Aunt Lian was already a little troublesome on the four floors, but in order to allow her daughter who doesn’t like to go out to walk more, she insisted on taking her daughter to the vegetable market to buy vegetables; at 4:00 pm in Yuexiu District, 65-year-old Aunt Liao directed her son to move a bag of clothes to the second floor, and they planned to send these clothes to her friends who were hospitalized the next day.
They are typical families of “supporting the disabled by the elderly”: their parents are at retirement age, but because their only children are accompanied by intellectual or mental disorders, they are still running around to support their disabled children, making it difficult to enjoy their old age as their peers.
In December last year, Guangzhou Yangai Special Children’s Club conducted a survey on nearly 600 ordinary elderly people and nearly 300 “old and disabled” families in Guangzhou, and released the “Research Report on the Elderly Care Services of Mental Retards in Guangzhou”. When mentioning the difficulties and challenges of children’s future resettlement planning, more than 60% of parents are most worried that their children’s lives are not guaranteed.
The parents who are getting older and the special children who are in their prime but cannot do without care, the elderly care anxiety of families who “maintain the disabled” are tangled into a huge question mark, waiting for the society to straighten it with practical actions.
Double old families for mentally disabled peopleCinema 1950 witch clothes draw Participate in the fun parent-child sports meeting
78-year-old mother and 44-year-old daughter: the hard-working plan and the reality of getting older
2016 was the most difficult year in Aunt Xian’s memory—first his wife was sent to the ICU after she became more emphysema and was sent to the ICU. After three months of hospitalization, she finally returned home to rest. A Ting, a daughter with an intellectual disability, suffered a stroke and was admitted to the hospital.
Aunt Xian, who was already 72, took on the burden of the family alone. Every day, she ran around the hospital and took care of two bedridden patients.Cinema 1950 witch clothes drawuntil they Babaylan 1990 cloth draw‘s condition gradually stabilized. During that period, she lost more than ten pounds at once.
But the crisis did not really pass. In August 2020, her long-term bedridden wife passed away. In September, A Ting was admitted to the hospital due to swelling all over her body. The problem of bradycardia after the stroke became more and more serious. At the lowest time, her heart rate was only more than 20 times per minute. The doctor suggested installing a pacemaker for A Ting, otherwise “it might be possible to sleep and lose people.”
“It would be fine if she really fell asleep and left, but she was afraid of being paralyzed and suffering even more. “Aunt Xian said that A Ting was in the hospital three times last year. For a period of time, it was difficult for even getting up, and she had to deal with urination and defecation in bed. In August last year, she made up her mind to install a pacemaker for A Ting: “It’s been recovering well now, but her right hand is not as flexible as before and can’t hold things. ”
The hardest time was when she was in the hospital. Aunt Xian, 78, has high blood pressure, diabetes and heart disease, and her health is no longer as good as before. Once, A Ting was hospitalized for two weeks. There was an available bed in the ward, so she pleaded with the doctor and went in. For this reason, she kept thinking about the hospital and the doctor’s goodbye: “I also have a heart disease, and I can’t take care of myself even if I take care of my daughter. The doctor asked me and my daughter to be hospitalized together, which saved me from hiring a nursing staff. ”
Considering that she is getting older, Komiks 1960 witch cloth drawIn the past few years, Aunt Xian asked many questions and made as detailed arrangements for her 44-year-old daughter: She joined the unit for her daughter and bought social security for more than 14 years. Now she is still missing for 9 months and has been 15 years; she bought two “Safety Project” insurance last yearThe total cost of A Ting’s three hospitalizations was more than 130,000 yuan, and finally the medical insurance and insurance reimbursement was only more than 15,000 yuan. She also applied for a waiting time for her daughter in the Guangzhou Disabled Care Home, hoping that when she was unable to take care of her daughter, her daughter could spend the rest of her life in the nursing home; she even began to consider who would be her daughter’s guardian after she left.
The thoughtful plan faces the increasingly aging reality, sometimes it is inevitable to be stretched. In September last year, due to the increasing problem of lumbar disc herniation, Aunt Xian had to be hospitalized for surgery. But now Babaylan 1990 cloth drawA Ting couldn’t take care of herself completely at home. In desperation, she had to ask her sister to come to take care of her for a few days, and “my sister is also in her 70s.”
Some time ago, the staff came to Aunt Xian to conduct a comprehensive assessment of her elderly care needs, and the assessment results were mild disability and second-level care. “To take good care of her, I must ensure that I am healthy.” Since A Ting had a stroke, in order to facilitate nighttime care, Aunt Xian has been sleeping in the same bed with her daughter. She had to get up to check if there was any movement. “I hope I can stay at home until I can’t take care of her, and see if it’s possible to live in a nursing home with her.”Babaylan 1990 clothes draw
A Ting (left) and Aunt Xian were looking at photos of their previous trips.
The 65-year-old mother and 38-year-old son: “You have the ability to take care of yourself and you will live a better life in the nursing home in the future.” “Catch this place with your right hand and pick it up.” As soon as she came back from outside, Aunt Liao directed her son A Ming to move a bag of clothes to the second floor. A Ming wiped his sweat, grabbed the knot pointing to by his mother with his right hand, and took the bag into his arms with his left hand. He looked focused and said nothing, Babaylan 1990 cloth draw obediently walked towards the stairs.
This is the daily life of the mother and son. 38-year-old A Ming was diagnosed with an intellectual disability since childhood and it was difficult to complete slightly complicated tasks independently. Aunt Liao, 65, patiently dismantled each move one by one and converted it into instructions that her son could understand and execute, so as to exercise his ability to take care of himself.
“200Komiks 1960 witch clothes draw7 years ago, the month when I retired, he suddenly fell ill, and then adjusted for 10 years before the condition was basically stable. “Now when I think back, Aunt Liao still blames himself. Ah Ming suffered from epilepsy at the age of 6Cinema 1950 witch cloth draw at that time, but because of his lack of understanding of this disease, he missed the best opportunity to effectively control it. In 2007, Ah Ming’s condition took a sharp turn for the worse. The schizophrenia induced by epilepsy made him unable to sleep at night. Babaylan 1990 cloth draw “Sometimes, I muttered alone and talked to the air.” In those 10 years, she took her son to seek medical treatment and medicine: “At the beginning, the monthly pension was only 1,111 yuan, and he had to spend six or seven hundred yuan every month just taking medicine. ”
She never avoided his condition in front of A Ming, and even often “vaccinate” to him, saying, “My mother will leave sooner or later.” In the race against time and disability, her desire to help her son realize her basic self-care is becoming more and more urgent: “If I leave, he has the ability to take care of himself, and he will live a better life in the nursing home in the future. “
At the beginning of this year, Aunt Liao had to be admitted to the hospital for thyroid problems, and how to take care of A Ming’s daily life became the biggest problem.
She left enough food in the iron box where she kept the change, and appointed A Ming to solve three meals a day at a snack shop near her home, and asked the owner of the snack shop to help pay attention to A Ming’s situation; at the same time, she entrusted a distant relative to accompany A Ming at home every night to prevent accidents such as “touching the electric door with wet hands”. After everything was arranged, she Only then did she have a peace of mind to go through the admission procedures.
But while Aunt Liao was hospitalized, A Ming, who had not seen her mother for a long time, called and said, “You are not at home, I am so lonely alone.” The phone call made her break her defense in an instant. She whispered to comfort her on the other end of the phone, “You clean the house and your mother will come back.” The obedient A Ming focused on shading the tables, chairs, benches, and corners in the house: “He wiped all the way to the iron gate outside the house, but the wind blew the door slammed and locked him outside. “
Now A Ming, he can eat, dress, take bath and go to the toilet on his own, shop independently, and carefully place the things at home neatly. He occasionally listens quietly to the tricycle outside the door crossing the loose stone road and goes away with a “bang” all the way. He likes to play basketball, often linger near the Yuexiu Park Stadium with his ball, waiting for the stadium to gradually lose people in the evening, and carefully shoot on the court. He also likes to browse current news through his mobile phone, claiming that he likes to watch international news the most, and evenWhen the reporter asked him what were the hot international news that day, he blurted out that “Biden was infected with the new crown.”
A Ming like this also made Aunt Liao imagine what would happen if her son had a sound intelligence development: “In that case, he should have already started a family now.”
Parents of special children gathered together to participate in entertainment activities
The 75-year-old mother and 38-year-old daughter: breathing service, let family affection take occasional vacation
After her husband passed away, the burden of caring for the only daughter Longlong, who was intellectually disabled, was pressed on Aunt Lian’s shouldersCinema 1950 witch cloth draw.
From the outsider’s perspective, Longlong, 38 years old this year, is not considered a considerate “little cotton jacket” on Babaylan 1990 clothes draw. She is sensitive by nature and does not like to contact the outside world. She often stays at home to watch the cartoon “The Guardian of the Universe” or reads the early education storybooks borrowed by Aunt Lian from the library. Sometimes she has a change in emotions and will get angry at her elderly mother and break up Aunt Lian’s six elderly mobile phones.
“Although I have raised her for more than 30 years, sometimes Komiks 1960 witch cloth drawI don’t know what she is thinking.” Aunt Lian said that Longlong’s temper comes and goes as fast as a child, and she can’t predict it. “For example, if the food is cold and she asks her to heat it up before eating, she will be unhappy. Sometimes she is taking medicine and telling her to pack up the things for a while, and she will be unhappy again.”
Mothers always use the greatest kindness to tolerate and understand the children. In Aunt Lian’s opinion, Longlong has poor language expression skills. She is aware of some things but cannot express them, so she will be anxious. At this time, “Don’t conflict with her head, Komiks 1960 witch cloth draw can only reason with her after she gets angry.”
But the mother, who is overwhelmed by the double burden of life and psychology, also longs to be tolerated and understood. Once Longlong lost his temper again and even beat someone, the frustrated Aunt Lian called the help number of Guangzhou Yangai Special Children Parent Club. That night, Yang Ai arranged for a social worker who often entered the household to move into Longlong’s house and temporarily took over the care of Aunt Lian.The burden allowed Aunt Lian to rest for a short week at her sister’s house. When talking about this rare “respray service”, Aunt Lian is still full of gratitude: during that time, social workers helped take care of Longlong, led her to learn how to buy vegetables and cook, and study at the street medical station. After discovering the safety hazards of the kitchen, she assisted in contacting professionals to renovate the kitchen, “I think of that social worker when I see the kitchen now.”
Although she kept shouting from time to time, “I will ignore you if I get angry”, when it comes to Longlong, Aunt Lian always surrenders: “What’s the solution? I can’t let her go.”
When her husband was seriously ill and was hospitalized in 2009, Aunt Lian ran away from home and was unable to do anything, but after searching for a while, she couldn’t find a place suitable for short-term care. She could only send her daughter to her own sister’s house to take care of her.
In 2016, Aunt Lian had to be admitted to the hospital for surgery due to lumbar disc herniation. She was worried that Longlong would take her to the hospital together: the mother and daughter had three meals a day in the hospital canteen. During the day, Longlong sat and played in the hospital or chatted with the nurses. After dinner, she went home to take a shower and sleep. During the three months after the operation, when I went home to bed and rest, because it was inconvenient to buy vegetables and cook for Longlong, Aunt Lian specially hired a nurse to help.
“She is getting older and older, and our destination is always a nursing home. When I still have the ability, I always want to let her live a warm life with a family.” When I mention the future, even my aunt’s tone was melancholy and helpless. She planned to sell her house she lives in now and take Longlong to live in a nursing home. “I hope that in the future there will be some institutions like this that can accept us and live in together.”
Parents of special children participate in the open day estate supervision event for lawyers
In-depth interpretation
How to support the elderly with “Super the elderly and the disabled”:
The answer is still being explored. Changes have occurred
Parents who are getting older and children who are in their prime but still cannot do without care. I hope that an institution can accept elderly parents and disabled children at the same time—it is the same voice of Aunt Lian and others.
《2020 Guangdong Province Disabled Personnel AffairsCinema 1950 witch cloth draw Industry Development StatisticsThe Bulletin shows that as of the end of 2020, there were 1,774 disabled care service institutions in Guangdong Province, including 30 boarding care service institutions, 1,695 day care institutions, and 49 comprehensive care service institutions. But for older people with mental disabilities, the more common choice is to go to public care institutions. In Guangzhou, there is only one public care institution that is counterpart to those with mental disabilities.
In March this year, Aunt Lian ranked Longlong in Guangzhou Disabled Care Home, and the latest waiting list for application is 692. As of June 29 this year, 706 people have applied to Guangzhou City Disabled Persons’ Hospital for Nursing Home for Nursing Residents. The application time shows that the first waiting staff has waited for 1 year for 1Cinema 1950 witch cloth draw—his application time was July 2011.
How many families like this “supporting the disabled” in Guangzhou are still there? This may be seen from a set of public data: data from Guangzhou Sunshine Angel Social Work Service Center shows that there are 1,730 registered disabled people in Shilou Town, Panyu District, Guangzhou, and among the disabled people, there are 117 families with disabilities who rely on elderly people aged 60 or above to provide care and support, accounting for 6.8% of the disabled people.
“If calculated based on this ratio, there are about 20,000 to 30,000 families in Guangzhou that are ‘soldiers’. If these parents leave in the future, the placement of children will be a big problem and require intervention and attention in advance.” Liang Zhitu, director-general of Guangzhou Yangai Special Children Parent Club, told reporters that since 2018, Yangai has established a member group for the double-old family to provide case management, life care, emotional support, information, home skills training and other services for the two-old family members of mentally disabled people. “We hope that through such practice, we will explore how to do service support for the ‘old-old family’ families with elderly people’. It is different from ordinary Cinema 1950 witch cloth draw. The elderly care services of 1950 witch cloth draw are different from special children’s families whose parents are not yet retired. ”
In Liang Zhitu’s view, the real solution to these special family pension problems is related to the key toIt is necessary to return to the community’s home-based elderly care: “This group is too large, and the government’s bottom-up measures can only digest thousands of beds at most. Can existing community elderly care service resources, rehabilitation and household service resources, etc. be applicable to families with “supporting the disabled with the elderly”? How to ensure the services and quality of life of these special families? These issues must be considered in the future policy design.”
The answer is still being explored, but some good changes are happening quietly.
In June 2019, under the business guidance of the Yuexiu District Disabled Persons’ Federation of Guangzhou City, the “Guangzhou District People with Mental Disabilities’ Support Pilot Project for Two Elderly Family Support for Mental Disabilities” was officially launched, and some regular and emergency response services have been gradually formed, such as providing psychological counseling and emotional support, coordinating home-based elderly care personnel to take care of mentally disabled people in the short term to reduce the burden on parents of mentally disabled people, etc. At the same time, it is also gradually improving the service resource library to Babaylan 1990 clothes draw and service support system. Liang Zhitu found that among the more than 30 families they provide case management, parents have gradually learned to refine specific needs, such as how to reasonably plan property and how to do custody, etc., and have a clearer understanding of children’s future planning and resettlement.
It is reported that Guangzhou Yangai Special Children Parent Club has implemented the “Guangzhou ‘Old and Disabled Family Energy Enhancement Support Plan” through the implementation of the 9th Guangzhou Social Organization Public Welfare Venture Capital Activity Funding Project, extending existing practical experience to more “old and disable” families. “At the same time, we have also discovered some new needs, such as breathing services. The government currently does not have relevant service resources. In the next step, we are preparing to establish a temporary care point and explore relevant service models.” Liang Zhitu said.
(At the request of the interviewee, A Ting, A Ming and Longlong are all pseudonyms.)